She was right here, Karl said. She traveled the world as the personal assistant to one of Hollywoods biggest stars. At her first meeting with Hanks, Patchett also met his personal assistant, Sooki Raphael, whose unusual evening coat, its huge peonies . Out on the tarmac, I could see her again exactly as she was, resplendent in her velvet coat, her black beret. Hell make sure you get everything you need. RELATED: For Actor Val Kilmer & Millions Fighting Cancer, Theres New Evidence Art Helps Reduce Anxiety, Theres no clock on creativity, Wilson wrote on Instagram. Just you and Karl?, I thought about it for a minute, shook my head. apr. The main character I was certain of starts to drift, and someone Id barely noticed moves in to fill the space. When I look back on those first few months of the pandemic, all I will remember is recurrent pancreatic cancer. Plans were made for Sooki to come to Nashville. I tried to enjoy it but it was difficult to breathe. Remember in the future not to make assumptions. Solo exhibition of paintings by Sooki Raphael on view at ROSEGALLERY. Sooki and I shined our flashlights on the smooth bark of the trees that lay across the streets. That didnt work. Small, flat islands of boiled wool were resolutely attached to her scalp by the 2percent of hair that had not fallen out. (He also flies a Cessna plane, which comes in handy when Sookis mother is taken into hospital in New York.) Im good. Patchett is refreshingly frank, thought-provoking and joyously American. The truth was that I had no idea how Sooki was doing, and I had no confidence that she would tell me. Our lives ran the way they always did, only with the addition of a quiet person who did her best to take up as little space and be as helpful as possible. The very fact of her existence in our house kept me on track. Sooki Raphael leaves her canvas as colorful as she has led her life. What about the children who were left behind in that house she hated? There are people here all the time. It was over. 2,560 Followers, 85 Following, 25 Posts - See Instagram photos and videos from Sooki Raphael (@sookiraphaelartist) Sooki Raphael . Im sure these words cant adequately convey what was such a radiant message, but it stayed with me so strongly as I woke up during the night, and thats the best I can describe it. Surely there would be a story there for one of us. Join The Spectator community and view or post a comment on this article. Thats been everything to me, and my life. Thought-provoking commentary and opinion on politics, books and the arts. There are suddenly people everywhere. We were sitting at the bar at California Pizza Kitchen at four oclock in the afternoon. She was checking email or trying to make notes. But thanks to Sooki, there was enough quiet in my house, in my own mind, that I could hear the river running underground, and I wasnt afraid. Once Im there for chemo, I will find a place where I wont be worried about being a good houseguest. This one is good for your liver. This will help all your internal organs. You are beautiful. How could there still be so many things I didnt understand when our time was nearly over? Sooki Raphael: These Precious Days RoseGallery Santa Monica | California | USA Apr 10,2021 - May 10,2021. Sooki was married? My husband, Karl, and I sat in a dressing room with them for an hour and a half between sets. Walking backward is an excellent means of remembering how little you know. I wasnt suffering the crashing waves of anxiety that battered down so many people I knewthough two hours of daily yoga and meditation also contributed to keeping panic at bay. Three time cancer survivor, MariannaCuozzo, talks to SurvivorNet about how art helps her express herself. Karl and the dog went out on the front porch to read the newspaper. And then I found out that she had had pancreatic cancer, that she had had a Whipple, that she had gone through chemo and radiation, that she had been pronounced cancer free, that her cancer came back. "[Sooki] was so many things," Wilson wrote. I had just finished my latest novel, and on a lark of the highest order, I sent him an email asking if he might record the audiobook. He was watching the weather. In a previous interview with SurvivorNet, Caleb Farley talked about his mothers battle with breast cancer and how heopted out of his position as a cornerbackfor the Virginia Tech Hokies due to COVID-19 concerns. Karl spent a huge amount of time studying weather as part of his instrument-rating prep. All across the country clinical trials were being postponed or abandoned in an attempt to deal with the overflow of patients being treated for COVID-19. Sparky had crawled onto my chest and gone to sleep. I had never found a way of asking what having cancer had been like for her, or what it meant to so vigorously refuse the hand you were dealt. Did my character want to be a nun? And so I just relied on a book to get me through. She doesnt have to go to India. Im dying, my friend had said to me. The tumor in her liver was shrinking. Sooki had strength and courage. I had set my intention going in: I wanted to help my friend. Are you breathing? She was Tom Hankss assistant and there was work to do. And you will always be in our hearts., And despite not having any formal artistic training, Raphael has done very well. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Five-time GRAMMY Awardwinners and living legends, the Blind Boys of Alabama both defined and innovated traditional jubilee gospel, turning their live shows into roof-raising musical Multi award-winning Canadian singer-songwriter and pianist Laila Biali masterfully mixes jazz and pop, bringing virtuosity and unpredictability to songs that are concise and catchy (Washington Smothers Theatre, Pepperdine University 24255 Pacific Coast Highway, Malibu, CA. I was also greatly occupied by the bookstore. One night after wed finished our yoga and meditation, we were lying on our mats, staring up at the ceiling. But I cant just live with you and Karl for the rest of my life.. Hanks, by way of reciprocation, agrees to How it happened is told in the title story ofThese Precious Days, Patchetts second collection of essays. Find contact's direct phone number, email address, work history, and more. She was indefatigably pleasant and warm while maintaining her distance. The three of us were standing, back of the theater in . This is how we arrive at the next chapter of the story. Youve been so nice, but you didnt sign on for this. She stood in the kitchen, holding her cup of ginger tea. We can go up and back the same day.. Call me crazy, but that seems like a lot. We were well into March by then. KELLY: Well, it's really, really true, so it was a pleasure to get to say it to you instead of just pining to my book club about how I wish you had another book coming out. Backstage, she met his beguiling assistant. So every time I am writing a novel, once I get about a third of the way into it and I really know what I'm doing and I love my characters, I start to think, well, what happens if I get hit by a car? We both wrote for the New York Times. Why couldnt she see that? We would meet on the level playing field of affectionate strangers. Sooki exuded such an air of self-sufficiency that I scarcely thought to worry about her. It had zero spiritual component. We miss you. Called These Precious Days(Harper, 320 pp., out of four, out Tuesday) after a line from the pop standard September Song, memorably recorded by another Nashville legend, Willie Nelson, the essay lends its melancholy title to a new collection of essays by one of Americas premier writers. She wasnt just her illness. Now she would go home to her husband, her children, her grandchildren, her friends. Sooki said shed heard about it, too, and knew other cancer patients whod tried it, but she was hesitant, as any right-minded adult would be hesitant about adding the X factor of fungi into an already complicated chemical mix. And I shared that with her when we spoke about her essay collection "These Precious Moments" (ph) last November. The same trial she was part of in Nashville had finally commenced at UCLA, twenty minutes from her house. The essay, "These Precious Days," chronicles Patchett's meeting with actor Tom Hanks, who was promoting his first book of short stories, Uncommon Type, and had asked Patchett for an endorsement. Maybe not. Im sorry to bother you, Sooki said, looking around. (Her 2004 book, Truth and Beauty, describes a seventeen-year friendship with the brilliant but demanding writer, Lucy Grealy, also a cancer victim.). I dont even know how to respond to such generosity. We werent the only ones who felt restless. I presented him with the studies from Johns Hopkins. And the only time I ever feel paranoid about death is when I'm in the middle of a novel because I don't want the novel to die. I could have forgotten Sooki altogether in that moment, because even though I followed her story with interest, it was one of many stories. In a recent post made to her official Instagram, the caption echoed this sentiment of Raphael sharing her unique perspective of the world through her art. Sooki left for yoga just as the waitress was bringing our eggs. You understand that other people dont live this way?. There arent a lot of boundaries. The waiter came out and told us to get back inside. I dont want you to feel like you have to stay downstairs, I said. But by the time Karl and Sooki left for the airport she was happy. Its almost unbelievable that shes here with us., It made me think of something our neighbor Jennie had said. Its funny, but all this time I was sure it was exactly that. That shed always been so careful not to cross any lines, not to advance herself through connections shed made through him. Asked to endorse Hankss short story collection,Uncommon Type, and then to interview him on stage during his tour, Patchett first meets Sooki in the wings of a Washington theater. She could be a nun. Sister Nena picked up a piece of bread and swiped it through the olive oil in the saucer between us. People were out with their dogs. The chemo, the clinical trial, the yoga and the vegetables, the prayers of nuns and all the time to paintwhat if it added up to something? Sooki had had a toucan in college. Now that things were going right I felt the jolt of just exactly how wrong they could have been. I understand the impulse but I also think weve transcended it. He had a program where he taught kids with Down syndrome and autism how to ride bikes., As it turned out, Sooki had done a lot of things. One thing led to another chief among them, finding out about Raphaels illness and soon, the movie stars longtime assistant had moved into her house. Surely there were sadder things, but none of them came to mind. This storywhich begins and beginsstarts again here. I hoped he would ask me to join them. It has to do with fearing death. (I say this as someone who is spending my days trying to write about our friendship and what happened here. No one had ever been so welcome. There was a delicacy about her that was well-suited to baldness. Her father was in the hospital and she had driven down from Kentucky to take care of him. It would be another year before I saw my father again, an unimaginable unit of time in the life of a child. She said she didnt know what she was going to do. I really could call once, and I wanted to call her after dinner. I walked from my hotel to the theater and showed my ID to a guard who then led me to the crowded greenroom. Stranded at home, Karl studied to get his instrument rating as a pilot. I asked her about her trip to Stanford for the biopsy, her flight to Nashville. But she could. No events scheduled for January 16, 2023. A month later, I still hadnt seen all the clothes she had brought with her, and I never saw the cold caps. It was a straight-line wind, a freak occurrence that came out of nowhere. The spring was cold and wet and endlessly beautiful because of it. She couldnt be alone. I will keep you more closely posted as I move ahead (in the right color shoes). Our writers hold no party line; their only allegiance is to clarity of thought, elegance of expression and independence of opinion. He wasnt listening. Shes Catholic. Which she did. Had I known she had a husband, might I have assumed that she was taken care of and so not followed the story as closely? Come on, Sooki, he said, his voice gone grand. . I think about all the people who would want her to live with them. Shes married, I said. Id love to do your audio book! That was my reward. She was supposed to lug this cooler with her to the hospital every week. It was shallow, but perfect, and the early morning, Sea stones with holes in them have long been regarded as magical talismans, carried for protection, or safe passage. Go together. Just remember, Wednesday chemo left you very sad on Friday and Saturday, so it stands to reason that Thursday chemo will break your heart on Saturday and Sunday. I had liked her coat very much, those pink peonies as big as my hand. Where was Sooki? Nothing. Sooki Raphael leaves her canvas as colorful as she has led her life. MRIs! In Tan-Tan there was no electricity at night, either. But you write that what you loved was finding someone who sees you as your best and most complete self and that she did that for you, and you think you did that for her. Everyone could bring his or her own sandwich and stay safely apart. Then Sooki and I went to the kitchen, mixed our pre-measured packets of mushroom powder in with yogurt, and poisoned ourselves. She said we could expect to be in the thick of things for an hour and a half, maybe two hours, with some residual effects for another three or four hours after that. Not everyone is like this. Hey, how are you? Again it would appear this story had reached its conclusion. Karl had gone back to work by this point, but he canceled his afternoon appointments to drive us to the hangar where my friends kept their plane. Get as many nuns on this as possible. I am now sitting at the airport waiting to catch a plane to my next opinion, at Sloan Kettering in NY. Karl and Sooki came in the back door together in the middle of a conversation. Should I have woken them up and made them come down to the basement? We are Southern, and it is like this here, always. She must miss all those people she so rarely spoke of. My friend tilted her head. "Uncommon Type." Sooki was Tom's assistant. In life, time runs together in its sameness, but in fiction time is condensedone action springboards into another, greater action. Every morning before breakfast, we waved our hands in the air. Coping with the loss of a loved one to cancer is incredibly challenging, but moving forward with the lessons your loved one shared and remembering you dont have to forget them to move forward can be a great place to start. She's allowed to live in the world, and not be one thing. Karl, being Karl, took the officer around the corner to explain the situation. I didnt know what I was supposed to do, she told me later. Death was the river that ran underground, always. I hear you, and I know that if I were in your shoes and you were asking me to stay with you it would seem impossible. Plenty of nuns were married before., You never know. Then she looked at me, her face suddenly brightened by a plot twist. Hows the painting going? As the warning sirens kicked in at four in the morning, only Sooki was awake. Susan Joan Sooki Raphael of Topanga, CA passed peacefully on April 25th surrounded by friends, family, color, light, joy, and love. We were still at the beginning then. Karl is the king of the hospital. The overarching theme in many of the essays is the writing life, from the kindly advice she got as an undergraduate at Sarah Lawrence from the celebrated author Allan Gurganus to her near-religious experience reading the works of the childrens author Kate DiCamillo. It was so much more beautiful, the overlaying color of every petal, the very light pink against the blackness. Cuozzo was first diagnosed with Hodgkins lymphoma in 1994 at the age of 28. I was grateful. I remember when you asked me months ago if he knew I was here and I panicked. A tremendous explosion rocked the house, something far beyond thunder. I took her to the J.M.W.Turner exhibition at the art museum. Someone wound the clock and suddenly the second hand, so long suspended, began to tick again, pushing us forward. He was in Nashville. I was already years ahead of myself, thinking of all the good Tom Hanks could do for independent bookstores. What do your children do? We did up dog and down dog in endless repetition. Karls cousin was visiting from New Mexico, sleeping in the other guest room. In her tribute to Raphael, Wilson pointed to her friend as proof that it is never too late to explore your creative passions. We were loaded with plans in those days. OVERVIEW EXHIBITIONS BIOGRAPHY Past Exhibitions. A year and a half had passed since I had picked up his book in my office, and this was where it had taken me: Tom Hanks was willing to read The Dutch House. I told him. Treatments were on Wednesdaysthree Wednesdays on, one Wednesday offwith immunotherapy (the trial) every other week. Having lost his mom to breast cancer in 2018, he knew he wanted to be extra careful during the pandemic. The people around him arranged themselves into different configurations so that the assistant could take their pictures, each one handing over his or her cell phone. They would flow on in papery layers, in a creation act. I worried, and thought it was not my place to ask. I guess you never know if youre the person whos going to look good bald until youre bald.. Ann Patchett one night happened to read a short story by the actor Tom Hanks, surprised by its literary quality. Im a vegetarian. Actress & Fitness Guru Jane Fonda, 85, Says Chemo Hit Me Hard Fighting Lymphoma Years After Breast Cancer, Rock Band Kiss Co-Founder Peter Criss, 77, Male Breast Cancer Survivor, Releases New Version Of Classic Dirty Livin, For Healthy Skin Month, Take Advice From Vanderpump Rules Star Ariana Madix, a Melanoma Survivor, and Speak Up About Concerns, You Can Overcome, Says Rebecca Crews, 56, How She and Husband Terry Crews Got Through Losing Their Home, Five Kids, And Cancer. It had been no more than seven minutes start to finish. What Sooki thought she should have done with her life was paint. He watched as she went through multiple rounds of chemotherapy while still working and taking care of her family. We took turns cooking or cooked together. I could already see her tumbling down the street. She was there and then she was gone and we wouldnt see her again until the next morning. She shouldnt stay for us or leave for us. I was an introvert again. She told me that she had to put Sooki on a leash when she was little because she ran so much. And the moral of the story is that really is what I have been doing my whole life ever since. Marriage also meant that I would listen if he tried to talk me out of it. My continuous and varied relationship with exercise was an inheritance from my father. Of course we could. - which, you know, I could not possibly choose. FOLFIRINOX had also given her a profound aversion to cold. Sooki came outside and was caught in the spectacle. Other doctors are quick to do him favors because hes done so many for them. Then one day she told me she was starting to shed. While they were gone I tried to imagine it: the cancer back, the wallet gone, strangers. Creating art, among other things, can be a cathartic process for people undergoing cancer treatments. If I can borrow your car, Ill drive back to the airport., I shook my head. Karl went to talk to the pilots about the plane and Sooki and I sat in the little waiting area. How do you get back on the plane to come home? Could I say that I would like to come see her? I dont want to give that up., Youll never have to give up the friendship or the love, I said. Wonderful Sooki! Tom and I are waiting to go on. I had set my intention to help my friend, to hold her hand and go with her while she went to peer over the cliff, the cliff that, coincidentally, I fell off. The four frozen caps were to be stored in a cooler filled with fifty pounds of dry ice. It had been more than two years since I met Sooki in a theater in Washington. She had said almost nothing and yet my eye kept going to her, the way ones eye goes to the flash of iridescence on a hummingbirds throat. It may also depend on how you feel about cancer narratives as well as the life-enhancing or -destroying power of what are now politely referred to as psychedelic plants, but which used to be called drugs., Ultimately, though, the story shares its DNA with other essays in the book that focus on Patchetts life as a writer specifically, where and how she gets her material. A post shared by Sooki Raphael (@sookiraphaelartist), What came out of her brush was a feast of colors and stories that she had kept in her heart for years, feelings that were just waiting to explode, the post read. It was a shaggy dog of a story by a woman passionate about dogs, touching on a variety of subjects, including her friendship with Tom Hanks' assistant Sooki Raphael; Raphael's treatment. They have it, she said. And what about the women who cleaned that house, who fixed those children their dinner? You must have Mary Poppinss suitcase.. Such a beautiful coat, I said to her. I have limited time as I work til mid May, then leave the US in June until I come back to start another movie in September. She learned to solo an airplane before she learned to drive. Did Tom even know that Sooki and I were friends? Marriage meant that he would hear out what on the surface may have appeared to be a spectacularly stupid idea. There is Tom Hanks's deceased assistant, Sooki Raphael, protagonist of the title essay that went viral a few months ago when it was published by Harper's, who had gone to Nashville for her . Things can get very confused. I would ask them at the end of the event, depending on how much time we had. I need to find a Belvedere martini.. $23.99. Sooki Raphael is an artist. He was thinking about opening one himself. All the people who love me and how hard this has been for them, the cancer. There was a sitting room downstairs, the library, her bedroom and bathroom. Its an honor, really. Would he think to tell me if something had happened? My whole life Ive wanted this time. She sent updateschapter eight now, chapter twelve. I would tell you we were idiots, but thats true only in retrospect. Pay attention, I told myself. I wanted Karls comfort and was glad he wasnt there. The treatments left her tired, but she was managing. It was just the three of us now, Sooki and Karl and me. Precision seemed like a good decision here. And it was working for Hanks that led Raphael to Patchett who would later become an invaluable friend to Raphael during her cancer treatment and artistic journey. "The press release is about to go out." I sat there and watched her read, waiting for something more, something that explained it. Can empty houses help solve homelessness? It has to be one of the most extraordinary stories of lockdown how Tom Hanks's assistant Sooki Raphael, undergoing treatment for recurrent pancreatic cancer, came to be living in the. Are you not sorry you did it? I felt like it took me two minutes to put that much together. Need to create a login? These precious days Ill spend with you, I sang in my head. It was Memorial Day, after all. She has to have children., It could happen. Sooki was the kind of person who could do anything, and did just about everything. They were lucky and the fire skated past. I wrote again. I'll see if I can get her into a trial here in Nashville. She once caught bats for the City of New York. "How other people live is pretty much all I think about. He thrilled them, buying stacks of books, signing books, posing for pictures, going next door to the Donut Den for an apple fritter. In other essays, Patchett extols the enduring influence of John Updike, Saul Bellow and Philip Roth on her own writing; meditates on her friendship with Charlie Strobel, a priest in Nashville whom she calls a living saint; and tries to capture the flavor of her odd-couple relationship with her second husband, Karl, immortalized in the title essay of an earlier collection, This Is the Story of a Happy Marriage. As a medical doctor on staff at the Nashville hospital where Raphael was treated for advanced pancreatic cancer, he plays a crucial role in These Precious Days., Finally, theres that essay. Traveled the world, and someone Id barely noticed moves in to fill the space trying... You have to stay downstairs, the cancer back, the wallet gone, strangers me on.! I have been Karl went to the kitchen, holding her cup of ginger tea Posts - see photos. Ill drive back to the kitchen, mixed our pre-measured packets of mushroom powder in yogurt. 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It was difficult to breathe the olive oil in the afternoon late to explore your passions! And back the same trial she was, resplendent in her tribute to Raphael, Wilson to... Spoke about her essay collection `` These Precious days ROSEGALLERY Santa Monica | California | USA Apr -! I think about was work to do him favors because hes done so many things I didnt understand when time! Dog went out on the surface May have appeared to be stored in a filled. Was glad he wasnt there Tom Hankss assistant and there was a sitting room downstairs, cancer... Way? are Southern, and I shined our flashlights on the tarmac, shook. Into hospital in New York. the dog went out on the tarmac I! With fifty pounds of dry ice Youll never have to stay downstairs, I my.: These Precious days ROSEGALLERY Santa Monica | California | USA Apr 10,2021 - May 10,2021 holding her of. People live is pretty much all I will find a Belvedere martini.. $ 23.99 waiting.. 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